Braden's Room

Room Theme Makeover Request:       Star Wars

Makeover Date:                                   May 5, 2018


Braden was diagnosed with Cystic Fibrosis at birth.  He was born with an intestinal blockage and had surgery within his first 24 hours of life.   He was in the hospital for 7.5 months before he was well enough to come home.  He takes approx. 30-40 pills per day, and that’s just when he’s healthy.  Cystic Fibrosis patients have a thick, sticky mucus that traps all the bacteria that most of us can expel pretty easily.  This leads to frequent lung infections which lead to taking a lot of different antibiotics.  These bacteria often become resistant to the antibiotics so then they can no longer be used.   As he has gotten older, (He is now 14), he has started having more frequent needs for IV antibiotics which means hospital stays.  This can be hard because he is away from his friends, misses a lot of school and just doesn’t feel well.  He also has a vest that he wears that will percuss his lungs and help him cough up some of the junk in his lungs.  He does this 2-4 times per day, for up to 30 minutes each time.  While he is using the vest, he also does multiple breathing treatments so spends a lot of time hooked up each day.   Having this room remodel is such a blessing as he spends a lot of time in his room playing with LEGOs and video games while he does his treatments.

More about Braden:

Tulsa World Article on Room Reveal:

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